Back to Working with patients and families
Transcript
Screen appears with introduction and title of video ‘Working with patients and families at the Canadian Institute for Health Information’ (abbreviation CIHI).
CIHI logo appears at the bottom of the page.
Salima Hadibhai, Program Consultant, Patient Engagement, CIHI (in English)
At the Canadian Institute for Health Information, we are working to amplify and bring the patient voice to more of our work.
Mélanie Josée Davidson, Director, Health System Performance, CIHI (in French)
Patients offer a unique perspective that helps us better understand our data. Their experiences help us make our work relevant to decision-makers at all levels of health care.
Screen appears with the following text: At CIHI, the term “patient” includes clients, residents and family members/caregivers with lived and living experiences of health systems.
Salima Hadibhai, Program Consultant, Patient Engagement, CIHI (in English)
CIHI provides information on Canada’s health systems to improve outcomes in health system performance and population health across the country.
Yasir Khalid, Patient Advisor, Unity Health Toronto (in English)
CIHI has a very important role to fill by continuously identifying that their reports, or their analyses, included patients’ and families’ perspective.
Screen appears with the following text: CIHI receives evaluation surveys from patients involved in our work. Overall, patients are very satisfied and feel supported, prepared and heard.
Yasir Khalid, Patient Advisor, Unity Health Toronto (in English)
One story is illustrated by a data, but then there’s a different perspective that a patient or caregiver can provide.
Mélanie Josée Davidson, Director, Health System Performance, CIHI (in French)
When we look at the numbers and the data, it’s often easy to forget the human side of things. When working with patients, we remember that the health care system is really centred around humans. These are the people who deliver care, who manage our hospitals, who work to optimize our health care system, and they do it for the patients and for the people who need it, and that’s beautiful.
Salima Hadibhai, Program Consultant, Patient Engagement, CIHI (in English)
We involve patients in a variety of ways, whether that’s sitting at tables at our expert advisory group meetings, whether it’s filling out a survey, whether it’s telling their story so that we have context to our data.
Yasir Khalid, Patient Advisor, Unity Health Toronto (in English)
They approached me, and they were wondering what my experiences were. I was to provide a non-data but quantifiable, tangible perspective on what that data actually meant to a caregiver or a patient.
Amy Ma, Patient and Public Advisor, Choosing Wisely Canada (in French)
Right now we are working on a report, a very intense and close collaboration. This important joint report with CIHI aims to help support and rebuild our health system, which was significantly weakened by the global pandemic. We hope that our participation as patient partners will make the stories in this report understandable and relevant for the general public
Ann O’Riordan, Patient and Family Advisory Council Member, Kingston Health Sciences Centre (in English)
I’ve worked with many organizations, and I have high expectations of myself and what I offer as a patient partner. CIHI has consistently matched the standards that I set for myself and gone beyond in the partnership with me. In my experience, they have set a gold standard for patient partnership. The process that CIHI follows to engage patients in their initiatives is welcoming, respectful and comprehensive. Furthermore, I can see the patient and family voices in the outcomes of these projects.
Salima Hadibhai, Program Consultant, Patient Engagement, CIHI (in English)
Patients, families, caregivers, those with lived and living experience are providing a context, a lens to the data that we simply don’t have. And patients are really helping to bring the data to life.
Mélanie Josée Davidson, Director, Health System Performance, CIHI (in French)
So, one of the important lessons that our team has learned is to listen with respect and empathy to our patients’ stories and really working with them to get their stories heard across the country.
Ann O’Riordan, Patient and Family Advisory Council Member, Kingston Health Sciences Centre (in English)
I’m excited that patient engagement, patient partnership, is becoming an expectation and often the norm in health care improvements. By working together, I envision changes that promote healthier patients and care providers, as well as a more capable and robust health care system. Partnering with patients and caregivers is not only the right way to do things, it’s the best way.
Mélanie Josée Davidson, Director, Health System Performance, CIHI (in French)
Patients are at the centre of CIHI’s data.
Salima Hadibhai, Program Consultant, Patient Engagement, CIHI (in English)
We look forward to continuing the journey alongside patients in a way that’s purposeful, meaningful and authentic.
Final screen of video appears with CIHI logo. Below the logo appears the URL for CIHI’s website. English is cihi.ca. French is icis.ca. At the bottom of the screen appears the email address for CIHI’s Patient Engagement Office. patientengagement@cihi.ca