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Indicator Metadata

NameIncidence of End-Stage Kidney Disease (ESKD), by Primary Diagnosis
Short/Other Names

Not applicable

DescriptionBreakdown by primary diagnosis of all incident patients (new patients) with end-stage kidney disease who began renal replacement therapy (RRT) (either dialysis or renal transplantation) for the first time in the calendar year
InterpretationIncreasing incidence rates over time have important implications for resources, disease management and the need for kidney donation.
HSP Framework Dimension

Health System Outcomes: Improve health status of Canadians

Areas of Need

Not applicable

Geographic Coverage

All provinces/territories except Quebec

Reporting Level/Disaggregation

Province/Territory, Breakdown by sex, breakdown by age categories

Indicator Results

Incident End-Stage Renal Disease (ESRD) Patients by Primary Diagnosis

Identifying Information
NameIncidence of End-Stage Kidney Disease (ESKD), by Primary Diagnosis
Short/Other Names

Not applicable

Indicator Description and Calculation
DescriptionBreakdown by primary diagnosis of all incident patients (new patients) with end-stage kidney disease who began renal replacement therapy (RRT) (either dialysis or renal transplantation) for the first time in the calendar year
Calculation: DescriptionCounts and rates are based on patients registered during a given calendar year in a Canadian facility. Patients who began RRT for ESKD outside of Canada but are subsequently treated in Canada are included in prevalence counts but not incidence counts.
Calculation: Geographic Assignment

Place of service

Calculation: Type of Measurement

Rate - Per 1,000,000

Calculation: Adjustment Applied

None

Calculation: Method of Adjustment

Not applicable

Denominator

Description:
Canadian population
Inclusions:
All Canadians currently residing in Canada
Exclusions:
Not applicable

Numerator

Description:
Patients registered in the Canadian Organ Replacement Register (CORR) who started RRT for ESKD
Inclusions:
Patients registered in CORR during a given calendar year (January 1–December 31)

Patients must have a valid primary diagnosis code.
Exclusions:
Patients who began RRT for ESKD outside of Canada but are subsequently treated in Canada

Background, Interpretation and Benchmarks
Rationale

Disease etiology can be tracked by viewing changes in the primary diagnosis over time. There are significant costs associated with treating this patient group.

Interpretation

Increasing incidence rates over time have important implications for resources, disease management and the need for kidney donation.

HSP Framework Dimension

Health System Outcomes: Improve health status of Canadians

Areas of Need

Not applicable

Targets/Benchmarks

Not applicable

References

Nesrallah GE, Mustafa RA, Clark WF, et al. Canadian Society of Nephrology 2014 Clinical Practice Guideline for Timing the Initiation of Chronic Dialysis. CMAJ. 2014;186(2):112-117. Available at http://www.cmaj.ca/content/186/2/112

Levin A, Hemmelgarn B, Culleton B, et al. Guidelines for Management of Chronic Kidney Disease. CMAJ. 2008;179(11):1154-1162. Available at http://www.cmaj.ca/content/179/11/1154

Availability of Data Sources and Results
Data Sources

CORR

Available Data Years

Type of Year:
Calendar
First Available Year:
2006
Last Available Year:
2015

Geographic Coverage

All provinces/territories except Quebec

Reporting Level/Disaggregation

Province/Territory, Breakdown by sex, breakdown by age categories

Result Updates
Update Frequency

Every year

Indicator Results

Web Tool:
Quick Stats
URL:
Incident End-Stage Renal Disease (ESRD) Patients by Primary Diagnosis

Updates

Not applicable

Quality Statement
Caveats and Limitations

The indicator is based on voluntary data submitted to CORR from facilities across Canada. Submission of data for patients beginning RRT for ESKD is not mandatory.

Data from Quebec was not included because of significant under-reporting between 2011 and 2015, which may lead to biased results.

Trending Issues

An overview of under-reporting of incident ESKD cases can be found in Data Quality Documentation for Users: Canadian Organ Replacement Register, 2006 to 2015 Data .

Comments

Not applicable